The Canadian Registry for Pulmonary Fibrosis: Design and Rationale of a National Pulmonary Fibrosis Registry
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چکیده
منابع مشابه
The Canadian Registry for Pulmonary Fibrosis: Design and Rationale of a National Pulmonary Fibrosis Registry
Background. The relative rarity and diversity of fibrotic interstitial lung disease (ILD) have made it challenging to study these diseases in single-centre cohorts. Here we describe formation of a multicentre Canadian registry that is needed to describe the outcomes of fibrotic ILD and to enable detailed healthcare utilization analyses that will be the cornerstone for future healthcare planning...
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BACKGROUND Idiopathic pulmonary fibrosis (IPF) is a chronic interstitial lung disease characterised by progressive loss of lung function. Its clinical course is variable but ultimately fatal. There is a need for a multicentre patient registry incorporating longitudinal clinical data and biological samples to improve understanding of the natural history of IPF and contemporary practice patterns....
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We have read with great interest the recent review by Wilson et al stating the case for an international registry for idiopathic pulmonary fibrosis (IPF). This timely proposal prompts us to inform the community that, effective from 1 January 2008, the European Commission is funding a new network entitled ‘‘European IPF Network: Natural course, Pathomechanisms and Novel Treatment Options in Idio...
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ژورنال
عنوان ژورنال: Canadian Respiratory Journal
سال: 2016
ISSN: 1198-2241,1916-7245
DOI: 10.1155/2016/3562923